A Guide to Duchenne Muscular Dystrophy: Information and Advice for Teachers and Parents

By: Janet Hoskin and Kate Maresh and Francesco Muntoni and Veronica Hinton and Lianne Abbot and Victoria Selby and James Poysky and David Schonfeld and Nick Catlin and Celine Barry and Jon Hastie and Mark Chapman

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Synopsis: The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood. Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.