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For ages 3-7. When Natalie's little brother Evan Earl is born prematurely, he's earns the nickname Evan Earl-y. No one can say for sure when Evan will come home from the hospital. To help her with this uncertainty, Natalie's father gives her a calendar to keep track of the days -- each day that Natalie colours in is one day closer to the day her new brother can come home. When Natalie visits Evan at the hospital, she is curious about the Neonatal Intensive Care Unit (NICU); she talks to the nurses and her Mom explains how the tubes and machines are helping Evan to breathe and eat. As the days go by and become 'rainbow weeks' on Natalie's colouring calendar, she gets lonely and a little scared; her parents spend most of their time with Evan in the NICU. She tries to be patient, but finally gets upset by their neglect. Her Mom reassures her that they haven't forgotten about her. Over time, Natalie learns that, although her brother might always need special help and lots of attention, she can teach Evan their family traditions, even while he's in the hospital. This is a sympathetic and supportive story for other young siblings of preemies. The full-color illustrations are warm and bright, using Natalie's colouring calendar as a recurring visual theme throughout the story. The pictures portray just enough suggestion of the NICU medical setting to satisfy young reader's curiosity. Target Audience: Families with premature babies; kids aged 4 to 8 with premature sibs; professionals who work with these families (e.g., OB/GYNs, social workers, NICU nurses, neonatologists, paediatricians).
Married with Special-Needs Children is the first book for parents to examine the stress that is often placed upon a marriage when a couple has a child with a disability. Many parents worry that even strong marriages can buckle--and some may break--under the intense demands of raising a child with special needs. In this practical, supportive guide, the authors draw on their combined professional experience in marital counseling and parent training, and feedback from hundreds of parents of children with disabilities who share their solutions and secrets for a healthy relationship.
Solid, practical advice on how to cope with the many personal challenges mothers of children with disabilities face at home, at work, and within themselves. A "how to" guide for living a balanced, fulfilling life with advice from moms who have been there -- this includes the authors' experiences and insights, and tips from dozens of other moms of kids with special needs who filled out the authors' questionnaire. Jam-packed with useful steps you can take to make your life more manageable, and ultimately more fulfilling. The book addresses 2 main concerns: Taking Care of Yourself (at home physically, emotionally, practically, spiritually/psychically); Taking Care of Business. Target Audience: Mothers of children with developmental disabilities (e.g., Down syndrome, autism, cerebral palsy, etc.) or chronic health concerns.
All parent stories about raising a child with Down syndrome are special and unique, but in the hands of a good writer, they can have the power to reach, change, and resonate far beyond family and friends. And that is the case with this book by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from a spoiled, self-centered brat, who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a child with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep that, as Sophie once remarked to her mum, I love you so much my heart can't even believe it! Theirs is a story worth reading.