Learning to Live with Huntington's Disease: One Family's Story

By: Phil Dourado and Bromley Sulaiman and Danny Dourado and Chantel Sulaiman and Sandy Sulaiman and Wendy Dant

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Synopsis: Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.

Book Quality:: Publisher Quality
ISBN-13:: 9781846426308
Related ISBNs:: 9781843104872
Publisher:: Jessica Kingsley Publishers
Date of Addition:: 01/23/18
Copyrighted By:: Bromley Sulaiman, Danny Dourado, Chantel Sulaiman, Phil Dourado, Sandy Sulaiman, Wendy Dant
Adult content:: No
Language:: English
Has Image Descriptions:: No
Categories:: Nonfiction, Health, Mind and Body
Submitted By:: Bookshare Staff
Usage Restrictions:: This is a copyrighted book.