Big Data, Health Law, and Bioethics

By: Holly Fernandez Lynch and Urs Gasser and I. Glenn Cohen and Effy Vayena

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Synopsis: When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors. Focuses deeply on a particular type of big data - that which is health related - but covering a wide variety of issues, including privacy, research, regulation, and more, as well as philosophical and practical considerations. The book is timely, with a unique focus and coverage. In addition to thoughtful academic discussions, chapters contain proposed solutions to existing challenges, which take a variety of approaches, from market-based to regulatory