A Face for Picasso: Coming of Age with Crouzon Syndrome

By:

Synopsis
"Raw and unflinching . . . A must-read!" --Marieke Nijkamp, #1 New York Times-bestselling author of This Is Where It Ends.

I am ugly. There's a mathematical equation to prove it.

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.

Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.

Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

Copyright:
2021

Book Details

Book Quality:
Publisher Quality
Book Size:
400 Pages
ISBN-13:
9780374314095
Related ISBNs:
9780374314071
Publisher:
Farrar, Straus and Giroux (BYR)
Date of Addition:
Copyrighted By:
Ariel Henley
Adult content:
No
Language:
English
Has Image Descriptions:
No
Categories:
Nonfiction, Teens, Disability-Related, Biographies and Memoirs, Parenting and Family
Reading Age:
12–18
Submitted By:
Bookshare Staff
Usage Restrictions:
This is a copyrighted book.

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