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The Sports Doping Market
by Letizia Paoli Alessandro DonatiThis book examines sports doping from production and distribution, detection and punishment. Detailing the daily operations of the trade and its gray area as a semi-legal market, the authors cover important issues ranging from athletes most at risk to the role of organized crime in sports doping, and whether sports governing bodies are enabling the trade. Challenges for law enforcement and legislation, and efforts to control PED use in the worldwide sports community and among aspiring athletes, are also discussed in depth. The book's extensive research:* Estimates the demand for performance-enhancing products. * Traces the route from legal substances to illegal uses. * Identifies classes of suppliers and their methods of operation. * Tracks typical distribution systems from suppliers to users. * Examines the economics of the market: prices, profits, revenue. * Assesses the state of anti-doping law enforcement efforts. Starting with an unprecedented case study in Italy, the intense scrutiny from one pivotal country yields a potential template for research and policy on a world scale. Doping and Sport makes solid contributions to the work of researchers in criminology and criminal justice, particularly with an interest in corruption, drug trafficking, and criminal networks; researchers in sports science and public health; and policymakers.
The Sports Gene: Inside the Science of Extraordinary Athletic Performance
by David EpsteinNow a "New York Times" Bestseller. "In high school, I wondered whether the Jamaican Americans who made our track team so successful might carry some special speed gene from their tiny island. In college, I ran against Kenyans, and wondered whether endurance genes might have traveled with them from East Africa. At the same time, I began to notice that a training group on my team could consist of five men who run next to one another, stride for stride, day after day, and nonetheless turn out five entirely different runners. How could this be?" We all knew a star athlete in high school. The one who made it look so easy. He was the starting quarterback and shortstop; she was the all-state point guard and high-jumper. "Naturals. " Or were they? The debate is as old as physical competition. Are stars like Usain Bolt, Michael Phelps, and Serena Williams genetic freaks put on Earth to dominate their respective sports? Or are they simply normal people who overcame their biological limits through sheer force of will and obsessive training? The truth is far messier than a simple dichotomy between nature and nurture. In the decade since the sequencing of the human genome, researchers have slowly begun to uncover how the relationship between biological endowments and a competitor's training environment affects athleticism. Sports scientists have gradually entered the era of modern genetic research. In this controversial and engaging exploration of athletic success, "Sports Illustrated" senior writer David Epstein tackles the great nature vs. nurture debate and traces how far science has come in solving this great riddle. He investigates the so-called 10,000-hour rule to uncover whether rigorous and consistent practice from a young age is the only route to athletic excellence. Along the way, Epstein dispels many of our perceptions about why top athletes excel. He shows why some skills that we assume are innate, like the bullet-fast reactions of a baseball or cricket batter, are not, and why other characteristics that we assume are entirely voluntary, like an athlete's will to train, might in fact have important genetic components. This subject necessarily involves digging deep into sensitive topics like race and gender. Epstein explores controversial questions such as: Are black athletes genetically predetermined to dominate both sprinting and distance running, and are their abilities influenced by Africa's geography? Are there genetic reasons to separate male and female athletes in competition? Should we test the genes of young children to determine if they are destined for stardom? Can genetic testing determine who is at risk of injury, brain damage, or even death on the field? Through on-the-ground reporting from below the equator and above the Arctic Circle, revealing conversations with leading scientists and Olympic champions, and interviews with athletes who have rare genetic mutations or physical traits, Epstein forces us to rethink the very nature of athleticism.
The Sports Medicine Physician
by Andreas B. Imhoff João Espregueira-Mendes Moises Cohen Sérgio Rocha Piedade Mark ClatworthyThis superbly illustrated book provides information of outstanding quality on the presentation and management of the entire range of sports injuries and conditions likely to be encountered by the sports medicine physician, as well as many other topics relating to sports activity, events, and outcomes. It is the product of close collaboration among members of several ISAKOS committees, and the chapter authors are clinicians and scientists from across the world who are acknowledged experts in sports medicine and orthopedics. The book opens by discussing fundamental topics and principles, covering subjects such as the biomechanics of injuries, physiological demands in sports practice, sports activity at different ages, nutrition and hydration, strength and conditioning, injury prevention, recovery, rehabilitation, and return to play. Subsequent chapters focus in depth on overtraining injuries, neurological disorders, sports trauma to different parts of the body, and special clinical conditions. Further topics to be addressed are different scenarios in sports (e.g., indoor vs outdoor), sports equipment, biologic treatment of sports injuries, major sporting events, and patient-recorded outcome measures.
The Sports Rehabilitation Therapists’ Guidebook: Accessing Evidence-Based Practice
by Konstantinos PapadopoulosThe Sports Rehabilitation Therapists’ Guidebook is a well-equipped, comprehensive, practical, evidence-based guide that seeks to assist both students and graduate sport practitioners. The book is designed to be a quick-reference book during assessment and treatment planning, giving instant access to figures and case scenarios. It introduces evidence-based practice in all principal areas of sport rehabilitation such as anatomy, musculoskeletal assessment, pitch-side care, injury treatment modalities and exercise rehabilitation principles and related areas, and is designed to be more flexible than the usual single-focus books. It is written by a team of expert contributors offering a systematic perspective on core concepts. The book can be used as a guide in each stage of the sport rehabilitation process and it is an asset for sport clinical practitioners such as sport rehabilitators, sport therapists, personal trainers, strength and conditioning coaches, as well as for students on these and related courses in their daily practice on core clinical placements such as a clinic/sporting environment, pitch side and university.
The Springer Index of Viruses
by Christian Tidona Gholamreza DaraiThe continuous growth of knowledege makes it very difficult for scientists to retrieve comprehensive and accurate data on viruses. The desired information is often dispersed in a variety of books, journals and online resources. This encyclopedia presents the latest facts about all known virus in a standardized form created by hundreds of the world's leading virologists. Virus taxonomy represents the basic framework that allows an understanding of the complex evolutionary process that continuously takes place among viruses and their hosts. Each of the 300 taxonomically ordered chapters includes detailed information on individual genus members, historical events, the hosts they can affect (animal, man or plant), virion morphology, genome properties, replication strategy, properties of individual transcripts and proteins, sequence accession numbers, biological properties, diseases, recombinant vector constructs, vaccine strains, key references, as well as a high-resolution particle image and a drawing of the genome organization. Its high content of easily accessible detail information makes this Encyclopedia an indispensable tool for both researchers and lecturers. The new edition includes the recent discoveries made in this field as well as new viruses which have been discovered.
The Stars for a Light (Cheney Duvall, M. D. #1)
by Lynn MorrisChaney Duval, raised in Philadelphia amidst wealth and security, had overcome enormous odds simply by getting into medical school. Now she is poised to find a position where her years of study and her skills as a doctor will be recognized and put to good use. But she soon discovers that when her resume reveals her gender... she is summarily rejected. When Cheney comes across an intriguing advertisement: a doctor is needed to care for two hundred women, frontier brides, being transported by ship from New York City to Washington Territory--a perfect situation for her! Even before the journey begins, though, a foreboding shadow darkens her enthusiasm when the nurse she has hired, sight unseen, is not what she expected. Cheney has to wonder if she is truly prepared for this enormous responsibility
The State Of Quality Improvement And Implementation Research: Expert Views
by Institute of Medicine of the National AcademiesThe National Academies Press (NAP)--publisher for the National Academies--publishes more than 200 books a year offering the most authoritative views, definitive information, and groundbreaking recommendations on a wide range of topics in science, engineering, and health. Our books are unique in that they are authored by the nation's leading experts in every scientific field.
The State and Pattern of Health Information Technology Adoption
by Katya Fonkych Roger TaylorHelps focus the policy agenda for incentives to speed Healthcare Information Technology (HIT) adoption by estimating the current level and pattern of HIT adoption in the different types of healthcare organizations, according to information the Healthcare Information and Management Systems Society (HIMSS)-Dorenfest database, and evaluates factors that affect this diffusion process, using existing empirical studies and regression analysis.
The State of Health and Health Care in Mississippi
by Mario J. Azevedo, PhD, MPH, MAIn this multidisciplinary book, the editor and contributors provide the most accurate and most recent information on health and health care in the State of Mississippi. They explain why the state finds itself in precarious health conditions and reveal the prevailing circumstances as the state debates a path toward a comprehensive health care system for its citizens. They show who has had access to good health care in the state and celebrate the heroes who struggled to provide health care to all Mississippians, and contribute to the debate on how the health care system might be restructured, reconstructed, or adjusted to meet the needs of all people in the state, regardless of race, ethnicity, socioeconomic status, and national origin.The issue of health disparities and socio-economic status leads to a relevant discussion of whether health and access to quality care are a right of all people, as the United Nations has proclaimed, or the privilege of a few who have the economic resources and the political clout to purchase first-rate care. The volume offers a clear understanding of health care trends in the state since the inception of its health system during the eighteenth and early nineteenth centuries up to the present and the prospects of transcending the obstacles of its own creation over the past two centuries. It likewise highlights the economic challenges that Mississippi, like other states, confronts; and how wise and realistic its priorities are in meeting the needs of its diverse populations, particularly racial and ethnic minorities.
The State of the Prisons - 200 Years On
by Dick WhitfieldIn 1777 John Howard wrote The State of the Prisons in England and Wales, with Preliminary Observations and an Account of Some Foreign Prisons. Two centuries later, this extraordinary document commemorates his achievements in campaigning for reform. In the spirit of Howard himself, the Howard League for Penal Reform have compiled detailed observations of prisons from Sweden to South Africa, and from India to Nicaragua. The result is a valuable resource which includes unique insights into previously undocumented prison regimes.
The Statistical Analysis of Doubly Truncated Data: With Applications in R (Wiley Series in Probability and Statistics)
by Rosa M. Crujeiras Jacobo de Uña-Álvarez Prof Carla MoreiraA thorough treatment of the statistical methods used to analyze doubly truncated data In The Statistical Analysis of Doubly Truncated Data, an expert team of statisticians delivers an up-to-date review of existing methods used to deal with randomly truncated data, with a focus on the challenging problem of random double truncation. The authors comprehensively introduce doubly truncated data before moving on to discussions of the latest developments in the field. The book offers readers examples with R code along with real data from astronomy, engineering, and the biomedical sciences to illustrate and highlight the methods described within. Linear regression models for doubly truncated responses are provided and the influence of the bandwidth in the performance of kernel-type estimators, as well as guidelines for the selection of the smoothing parameter, are explored. Fully nonparametric and semiparametric estimators are explored and illustrated with real data. R code for reproducing the data examples is also provided. The book also offers: A thorough introduction to the existing methods that deal with randomly truncated data Comprehensive explorations of linear regression models for doubly truncated responses Practical discussions of the influence of bandwidth in the performance of kernel-type estimators and guidelines for the selection of the smoothing parameter In-depth examinations of nonparametric and semiparametric estimators Perfect for statistical professionals with some background in mathematical statistics, biostatisticians, and mathematicians with an interest in survival analysis and epidemiology, The Statistical Analysis of Doubly Truncated Data is also an invaluable addition to the libraries of biomedical scientists and practitioners, as well as postgraduate students studying survival analysis.
The Statistical Analysis of Multivariate Failure Time Data: A Marginal Modeling Approach (Chapman & Hall/CRC Monographs on Statistics and Applied Probability #1)
by Shanshan Zhao Ross PrenticeThe Statistical Analysis of Multivariate Failure Time Data: A Marginal Modeling Approach provides an innovative look at methods for the analysis of correlated failure times. The focus is on the use of marginal single and marginal double failure hazard rate estimators for the extraction of regression information. For example, in a context of randomized trial or cohort studies, the results go beyond that obtained by analyzing each failure time outcome in a univariate fashion. The book is addressed to researchers, practitioners, and graduate students, and can be used as a reference or as a graduate course text. Much of the literature on the analysis of censored correlated failure time data uses frailty or copula models to allow for residual dependencies among failure times, given covariates. In contrast, this book provides a detailed account of recently developed methods for the simultaneous estimation of marginal single and dual outcome hazard rate regression parameters, with emphasis on multiplicative (Cox) models. Illustrations are provided of the utility of these methods using Women’s Health Initiative randomized controlled trial data of menopausal hormones and of a low-fat dietary pattern intervention. As byproducts, these methods provide flexible semiparametric estimators of pairwise bivariate survivor functions at specified covariate histories, as well as semiparametric estimators of cross ratio and concordance functions given covariates. The presentation also describes how these innovative methods may extend to handle issues of dependent censorship, missing and mismeasured covariates, and joint modeling of failure times and covariates, setting the stage for additional theoretical and applied developments. This book extends and continues the style of the classic Statistical Analysis of Failure Time Data by Kalbfleisch and Prentice. Ross L. Prentice is Professor of Biostatistics at the Fred Hutchinson Cancer Research Center and University of Washington in Seattle, Washington. He is the recipient of COPSS Presidents and Fisher awards, the AACR Epidemiology/Prevention and Team Science awards, and is a member of the National Academy of Medicine. Shanshan Zhao is a Principal Investigator at the National Institute of Environmental Health Sciences in Research Triangle Park, North Carolina.
The Status Syndrome: How Social Standing Affects Our Health and Longevity
by Michael MarmotBased on decades of his own research, a pioneering epidemiologist reveals the surprising factors behind who lives longer and whyYou probably didn't realize that when you graduated from college you increased your lifespan, or that your co-worker who has a master's degree is more likely to live a longer and healthier life. Seemingly small social differences in education, job title, income, even the size of your house or apartment have a profound impact on your health.For years we have focused merely on how advances in technology and genetics can extend our lives and cure disease. But as Sir Michael Marmot argues, we are looking at the issue backwards. Social inequalities are not a footnote to the real causes of ill health in industrialized countries; they are the cause. The psychological experience of inequality, Marmot shows, has a profound effect on our lives. And while this may be alarming, it also suggests a ray of hope. If we can understand these social inequalities, we can also mitigate their effects. In this groundbreaking book, Marmot, an internationally renowned epidemiologist, marshals evidence from around the world and from nearly thirty years of his research to demonstrate that how much control you have over your life and the opportunities you have for full social participation are crucial for health, well-being, and longevity. Just as Bowling Alone changed the way we think about community in America, The Status Syndrome will change the way we think about our society and how we live our lives.
The Status of the Family in Law and Bioethics: The Genetic Context
by Roy GilbarWhere do a doctor's responsibilities lie in communicating diagnostic and predictive genetic information to a patient's family members? On the one hand, a patient may wish to retain confidentiality while the relatives seek information; on the other, a patient may wish to share the information while the relatives would rather not know. This volume investigates the doctor's professional legal and ethical obligations in the context of these two familial tensions. The examination is conducted within the liberal-communitarian debate, whereby the two philosophies hold different perceptions of the individual and the relationship he or she has with others. Within this theoretical framework, the book examines the approach taken by English medical law and ethics to the communication of genetic information to family members. Legally, the focus is on tort law and the law of confidentiality. Ethically, it concentrates on the approach taken by the bioethical literature, and more specifically by codes of ethics and professional guidelines.
The Stem Cell Hope
by Alice ParkA landmark book by the senior science writer at Time magazine introduces us to a medical breakthrough that can save our lives. Few people know much about stem cell research beyond the ethical questions raised by using embryos. But in the last decade, stem cell research has made huge advances toward eliminating some of our most intractable diseases. Now this sweeping and accessible book introduces us to this cutting-edge science that will revolutionize medicine and change the way we think about and treat disease. Alice Park takes us from stem cell's controversial beginnings to the recent electrifying promise of being able to create the versatile cells without using embryos at all. She shows us how stem cells give researchers an unprecedented ability to study disease while giving patients the promise of replacing diseased cells with healthy new ones. And she profiles the scientists and leaders-many with their own compelling stories-who have fueled the quest and will continue to shape the field in years to come. .
The Stem Cell Microenvironment and Its Role in Regenerative Medicine and Cancer Pathogenesis
by Pranela Rameshwar Cristian Pablo Pennisi Mayuri Sinha PrasadHow stem cells behave is very much a factor of their local microenvironment, also known as the stem cell niche. Physical, chemical, or electrical signals from the neighboring cells or biochemical signals from distant cells are crucial in the cell fate decision process. A major challenge of tissue engineering is to mimic the natural cell environment by designing very sophisticated scaffolds able not only to mechanically support cells, but also to release signals biologically relevant for governing stem cell fate. In addition, increasing evidence suggests that abnormal interaction of stem cells with their niche is responsible for altered cell function leading to malignant transformation. This book discusses some of the recent advances in stem cell research that may help understanding the properties of the niche that govern stem cell fate. Technical topics discussed include:Stem cell biologyCancer stem cellsStem cell interactions with biomaterialsEngineering the stem cell microenvironmentStem cells in tissue regeneration and repairThe Disputationes Workshop series is an international initiative aimed at disseminating stem cell related cutting edge knowledge among scientists, healthcare workers, students and policy makers. This book emerges as a result of the scientific contributions presented and discussed during the fifth Disputationes Workshop held in Aalborg (Denmark) in April 2014. The stem cell microenvironment and its role in regenerative medicine and cancer pathogenesis is ideal for academic staff and master/research students in biomedical and health sciences
The Sticky Synapse
by Michael Hortsch Hisashi UmemoriThis is a comprehensive book on how adhesive proteins contribute to synapse formation, function, and remodeling. Topics covered range from general synaptic processes to CAM-specific chapters and how these CAM families contribute to synaptic functionality.
The Stigma Effect: Unintended Consequences of Mental Health Campaigns
by Patrick CorriganDespite efforts to redress the prejudice and discrimination faced by people with mental illness, a pervasive stigma remains. Many well-meant programs have attempted to counter stigma with affirming attitudes of recovery and self-determination. Yet the results of these efforts have been mixed. In The Stigma Effect, psychologist Patrick W. Corrigan examines the unintended consequences of mental health campaigns and proposes new policies in their place.Corrigan analyzes the agendas of government agencies, mental health care providers, and social service agencies that work with people with mental illness, dissecting how their best intentions can misfire. For example, a campaign to change the language around mental illness by replacing supposedly stigmatizing words with empowering ones has made little difference in how people with mental health conditions are viewed. Educational programs that frame mental illness as a brain disorder have made the general public less likely to blame people for their illnesses, but also skeptical that such conditions can be cured. Ultimately, Corrigan argues that effective strategies require leadership by those with lived experience, as their recovery stories replace ideas of incompetence and dangerousness with ones of hope and empowerment. As an experienced clinical researcher, as an advocate, and as a person who has struggled with such prejudices, Corrigan challenges readers to carefully examine anti-stigma programs and reckon with their true effects.
The Stigma of Addiction: An Essential Guide
by Jonathan D. Avery Joseph J. AveryThis book explores the stigma of addiction and discusses ways to improve negative attitudes for better health outcomes. Written by experts in the field of addiction, the text takes a reader-friendly approach to the essentials of addiction stigma across settings and demographics. The authors reveal the challenges patients face in the spaces that should be the safest, including the home, the workplace, the justice system, and even the clinical community. The text aims to deliver tools to professionals who work with individuals with substance use disorders and lay persons seeking to combat stigma and promote recovery. The Stigma of Addiction is an excellent resource for psychiatrists, addiction medicine specialists, students across specialties, researchers, public health officials, and individuals with substance use disorders and their families.
The Stone That Never Came Down
by John Brunner&“A world on the brink of war . . . Credible characters, suspenseful plotting and Brunner&’s broad vision make this humane novel a winner&” (Kirkus Reviews). The world is awash in civic decay, military coups and revolutionary governments, bands of believers ('Godheads') roaming the streets and turning plastic crosses into assault weapons. One scientist has discovered a new kind of viral drug, VC, which has the power to drastically alter the human mind. It could save civilization but at what cost? And who has the right to make a decision about whether or not to use it? Brunner at his thought-provoking, action-packed best. &“One of the most important science fiction authors. Brunner held a mirror up to reflect our foibles because he wanted to save us from ourselves.&” —SF Site
The Storied Life of A.J. Fikry
by Gabrielle ZevinThis internationally bestselling sensation is a 'funny, tender, and moving' (Library Journal, starred review) tale about community, books and second chances set in a world you won't want to leaveA.J. Fikry, the grumpy owner of Island Books, is going through a hard time: his bookshop is failing, he has lost his beloved wife, and his prized possession-a rare first edition book has been stolen. Over time, he has given up on people, and even the books in his store, instead of offering solace, are yet another reminder of a world that is changing too rapidly.But one day A.J. finds two-year-old Maya sitting on the bookshop floor, with a note attached to her asking the owner to look after her. His life - and Maya's - is changed forever.Gabrielle Zevin's enchanting novel is a love letter to the world of books--an irresistible affirmation of why we read, and why we love.Originally published as The Collected Works of A. J. Fikry.'Readers who delighted in Mary Ann Shaffer and Annie Barrows's The Guernsey Literary and Potato Peel Pie Society, Rachel Joyce's The Unlikely Pilgrimage of Harold Fry, and Jessica Brockmole's Letters from Skye will be equally captivated by this adult novel by a popular YA author about a life of books, redemption, and second chances. Funny, tender, and moving' Library Journal, starred review'This novel has humor, romance, a touch of suspense, but most of all love--love of books and bookish people and, really, all of humanity in its imperfect glory' Eowyn Ivey, author of The Snow Child
The Storied Life of A.J. Fikry
by Gabrielle ZevinBY THE AUTHOR OF THE SUNDAY TIMES BESTSELLER TOMORROW, AND TOMORROW, AND TOMORROW 'Marvelously optimistic about the future of books and bookstores and the people who love both' Washington Post A.J. Fikry, the grumpy owner of Island Books, is going through a hard time: his bookshop is failing, he has lost his beloved wife, and his prized possession - a rare first edition book has been stolen. Over time, he has given up on people, and even the books in his store, instead of offering solace, are yet another reminder of a world that is changing too rapidly. But one day A.J. finds two-year-old Maya sitting on the bookshop floor, with a note attached to her asking the owner to look after her. His life - and Maya's - is changed forever. Gabrielle Zevin's enchanting novel is a love letter to the world of books - an irresistible affirmation of why we read, and why we love. Readers say: 'A lovely uplifting book' five star reader review 'Devoured in a day. So much heart and control. Love it' five star reader review 'the writing style and characters made this novel a firm five stars' five star reader review 'This book has become my absolute favourite and not just best of the year but ever. I had to make a new shelf for it on GoodReads. I was completely blown away by it' five star reader review
The Story Within: Personal Essays on Genetics and Identity
by Amy BoeskyThe contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. <P><P>People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity―to deepen debate and generate questions. They or their families are affected by Huntington’s disease, Alzheimer’s disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.
The Story Within: Personal Essays on Genetics and Identity
by Amy BoeskyA thought-provoking collection of personal essays explores complex issues surrounding genetic identity.The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity—to deepen debate and generate questions. They or their families are affected by Huntington’s disease, Alzheimer’s disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.ContributorsMisha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl O’Hagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel (deceased), Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, Alice Wexler
The Story Within: Personal Essays on Genetics and Identity
by Amy Boesky“A compelling collection of essays that address the experiences of many who have genetically based illnesses.” —Library JournalThe contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it.People affected by genetic disease respond to such choices in varied ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what “health” is or whose life has value. They write hoping to expand conversations about genetics and identity—to deepen debate and generate questions. They or their families are affected by Huntington’s disease, Alzheimer’s disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.Contributors include: Misha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl O’Hagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel, Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, Alice Wexler