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Sounds and the City
by Stephen Wagg Karl Spracklen Brett LashuaThis book explores the ways in which Western-derived music connects with globalization, hybridity, consumerism and the flow of cultures. Both as local terrain and as global crossroads, cities remain fascinating spaces of cultural contestation and meaning-making via the composing, playing, recording and consumption of popular music.
Sounds and the City: Volume 2 (Leisure Studies in a Global Era)
by Stephen Wagg Karl Spracklen Brett Lashua M. Selim YavuzThis book draws from a rich history of scholarship about the relations between music and cities, and the global flows between music and urban experience. The contributions in this collection comment on the global city as a nexus of moving people, changing places, and shifting social relations, asking what popular music can tell us about cities, and vice versa. Since the publication of the first Sounds and the City volume, various movements, changes and shifts have amplified debates about globalization. From the waves of people migrating to Europe from the Syrian civil war and other conflict zones, to the 2016 “Brexit” vote to leave the European Union and American presidential election of Donald Trump. These, and other events, appear to have exposed an anti-globalist retreat toward isolationism and a backlash against multiculturalism that has been termed “post-globalization.” Amidst this, what of popular music? Does music offer renewed spaces and avenues for public protest, for collective action and resistance? What can the diverse histories, hybridities, and legacies of popular music tell us about the ever-changing relations of people and cities?
Sounds from Within: Phenomenology and Practice (Numanities - Arts and Humanities in Progress #18)
by Paulo C. Chagas Jiayue Cecilia WuThis book transforms phenomenology, music, technology, and the cultural arts from within. Gathering contributions by performing artists, media technology designers, nomadic composers, and distinguished musicological scholars, it explores a rich array of concepts such as embodiment, art and technology, mindfulness meditation, time and space in music, self and emptiness, as well as cultural heritage preservation. It does so via close studies on music phenomenology theory, works involving experimental music and technology, and related cultural and historical issues. This book will be of considerable interest to readers from the fields of sound studies, science and technology studies, phenomenology, cultural studies, media studies, and sound art theory. This book is equally relevant and insightful for musicians, composers, media artists, sound artists, technology designers, and curators and arts administrators from the performing and visual arts.
Sounds from the Other Side: Afro–South Asian Collaborations in Black Popular Music
by Elliott H. PowellA sixty-year history of Afro–South Asian musical collaborations From Beyoncé&’s South Asian music–inspired Super Bowl Halftime performance, to jazz artists like John and Alice Coltrane&’s use of Indian song structures and spirituality in their work, to Jay-Z and Missy Elliott&’s high-profile collaborations with diasporic South Asian artists such as the Panjabi MC and MIA, African American musicians have frequently engaged South Asian cultural productions in the development of Black music culture. Sounds from the Other Side traces such engagements through an interdisciplinary analysis of the political implications of African American musicians&’ South Asian influence since the 1960s. Elliott H. Powell asks, what happens when we consider Black musicians&’ South Asian sonic explorations as distinct from those of their white counterparts? He looks to Black musical genres of jazz, funk, and hip hop and examines the work of Miles Davis, John Coltrane, Rick James, OutKast, Timbaland, Beyoncé, and others, showing how Afro–South Asian music in the United States is a dynamic, complex, and contradictory cultural site where comparative racialization, transformative gender and queer politics, and coalition politics intertwine. Powell situates this cultural history within larger global and domestic sociohistorical junctures that link African American and South Asian diasporic communities in the United States. The long historical arc of Afro–South Asian music in Sounds from the Other Side interprets such music-making activities as highly political endeavors, offering an essential conversation about cross-cultural musical exchanges between racially marginalized musicians.
Sounds of Crossing: Music, Migration, and the Aural Poetics of Huapango Arribeño
by Alex E. ChávezIn Sounds of Crossing Alex E. Chávez explores the contemporary politics of Mexican migrant cultural expression manifest in the sounds and poetics of huapango arribeño, a musical genre originating from north-central Mexico. Following the resonance of huapango's improvisational performance within the lives of audiences, musicians, and himself—from New Year's festivities in the highlands of Guanajuato, Mexico, to backyard get-togethers along the back roads of central Texas—Chávez shows how Mexicans living on both sides of the border use expressive culture to construct meaningful communities amid the United States’ often vitriolic immigration politics. Through Chávez's writing, we gain an intimate look at the experience of migration and how huapango carries the voices of those in Mexico, those undertaking the dangerous trek across the border, and those living in the United States. Illuminating how huapango arribeño’s performance refigures the sociopolitical and economic terms of migration through aesthetic means, Chávez adds fresh and compelling insights into the ways transnational music-making is at the center of everyday Mexican migrant life.
Sounds of Freedom
by Thich Nhat Hanh John MalkinIn Sounds of Freedom, sixteen extraordinary musicians share their intimate thoughts on art, spirituality, and social change. These intimate interviews offer a rare glimpse into the personal motivations of these public artists.Includes interviews with: Michael Franti, Michelle Shocked, Ani DiFranco, Indigo Girls, Laurie Anderson, Philip Glass, Rickie Lee Jones, Boots Riley, John Trudell, Holly Near, Steve Reich, Darryl Cherney, Goapele Mohlabane, Tom Morello, Utah Philips.
Sounds of Freedom: Musicians on Spirituality and Social Change
by John MalkinSounds of Freedom brings together some of the contruy's best-known musicians to share their thoughts on spirituality and social change. Philip Glass, the Indigo girls, Michael Franti, Michelle Shocked, Laurie Anderson and others reveal their inspiration and their commitments to peace and justice. Featuring a foreword by Vietnamese Zen Master Thcih Nhat Hanh and a bonus CD of songs by the artists in the book, offers rare insight into the hearts of these musicians.
Sounds of Other Shores: The Musical Poetics of Identity on Kenya's Swahili Coast
by Andrew J. EisenbergSounds of Other Shores takes an ethnographic ear to the history of transoceanic stylistic appropriation in the Swahili taarab music of the Kenyan coast. Swahili taarab, a form of sung poetry that emerged as East Africa's first mass-mediated popular music in the 1930s, is a famously cosmopolitan form, rich in audible influences from across the Indian Ocean. But the variants of the genre that emerged in the Kenyan coastal city of Mombasa during the twentieth century feature particularly dramatic, even flamboyant, appropriations of Indian and Arab sonic gestures and styles. Combining oral history, interpretive ethnography, and musical analysis, Sounds of Other Shores explores how Swahili-speaking Muslims in twentieth-century Mombasa derived pleasure and meaning from acts of transoceanic musical appropriation, arguing that these acts served as ways of reflecting on and mediating the complexities and contradictions associated with being "Swahili" in colonial and postcolonial Kenya. The result is a musical anthropology of Kenyan Swahili subjectivity that reframes longstanding questions about Swahili identity while contributing to broader discussions about identity and citizenship in Africa and the Indian Ocean world.
Sounds of Survival: Polish Music and the Holocaust
by J. Mackenzie PierceSounds of Survival tells a story of unexpected musical continuity across some of the twentieth century's most cataclysmic events. It examines an integrated Polish and Polish Jewish musical community as its members contended with antisemitism in the 1930s, attempted to survive the Nazi occupation, and established a renewed musical culture amid the ashes of World War II and the Holocaust. Reconstructing these musicians' lives from the 1920s into the 1950s, J. Mackenzie Pierce argues that despite nearly unimaginable violence, many Polish musicians treated the war as a time of reinvention and cultural preservation. Their faith that music was a source of cultural continuity, however, also marginalized experiences of wartime loss, especially those of Jewish victims and survivors of the Holocaust. Sounds of Survival not only reveals that the Holocaust was a central event within modern Polish musical culture; it also shows why its musical aftermath has been difficult to hear.
Sounds of Vacation: Political Economies of Caribbean Tourism
by Timothy Rommen Jocelyne GuilbaultThe contributors to Sounds of Vacation examine the commodification of music and sound at popular vacation destinations throughout the Caribbean in order to tease out the relationships between political economy, hospitality, and the legacies of slavery and colonialism. Drawing on case studies from Barbados, the Bahamas, Guadeloupe, Saint Martin, and Saint Lucia, the contributors point to the myriad ways live performances, programmed music, and the sonic environment heighten tourists' pleasurable vacation experience. They explore, among other topics, issues of authenticity in Bahamian music; efforts to give tourists in Barbados peace and quiet at a former site of colonial violence; and how resort soundscapes extend beyond music to encompass the speech accents of local residents. Through interviews with resort managers, musicians, and hospitality workers, the contributors also outline the social, political, and economic pressures and interests that affect musical labor and the social encounters of musical production. In so doing, they prompt a rethinking of how to account for music and sound's resonances in postcolonial spaces. Contributors. Jerome Camal, Steven Feld, Francio Guadeloupe, Jocelyne Guilbault, Jordi Halfman, Susan Harewood, Percy C. Hintzen, Timothy Rommen
Sounds of the Borderland: Popular Music, War and Nationalism in Croatia since 1991 (Ashgate Popular and Folk Music Series)
by Catherine BakerSounds of the Borderland is the first book-length study of how popular music became a medium for political communication and contested identification during and after Croatia's war of independence from Yugoslavia. It extends existing cultural studies literature on music, politics and the state, which has largely been grounded in Western European and North American political systems. It also responds to an emerging fascination with the culture and politics of contemporary south-east Europe, expanding scholarship on the post-Yugoslav conflicts by going on to encompass significant social and political changes into the present day. The outbreak of war in 1991 saw almost every professional musician in Croatia take part in a wave of patriotic music-making and the powerful state television system strive to bring popular music under its control. As the political imperative shifted from securing national survival to consolidating a homogenous nation-state, the music industry responded with several strategies for creating a national popular music, producing messages about the nation and, in the ongoing debates over the origins of the folk music that inspired many songs, a way to define the nation by expressing what Croatia was not. The war on ethnic ambiguity which cut through individuals' social and creative lives played out across the airwaves, sales racks and gossip columns of a small country that imagined itself a historical and cultural borderland. These explicit and implicit narratives of nationhood connect many political phases: the months of fiercest fighting, the stabilised front, the uneasy post-war years when the symbolic frontline region of eastern Slavonia had still not returned to Croatian sovereignty, the euphoria and instability after the end of the Tudjman regime in 2000, and Croatia's fraught journey towards the European Union. Baker's book provides valuable insight into the role of music in a wartime and post-conflict society and will be essential reading for researchers and students interested in south-east Europe or the transformation of entertainment during and after conflict.
Sounds of the Citizens: Dancehall and Community in Jamaica
by Anne GalvinDancehall: It's simultaneously a source of raucous energy in the streets of Kingston, Jamaica; a way of life for a group of professional artists and music professionals; and a force of stability and tension within the community. Electronically influenced, relevant to urban Jamaicans, and highly danceable, dancehall music and culture forms a core of popular entertainment in the nation. As Anne Galvin reveals in Sounds of the Citizens, the rhythms of dancehall music reverberate in complicated ways throughout the lives of countless Jamaicans. Galvin highlights the unique alliance between the dancehall industry and community development efforts. As the central role of the state in supporting communities has diminished, the rise of private efforts such as dancehall becomes all the more crucial. The tension, however, between those involved in the industry and those within the neighborhoods is palpable and often dangerous. Amidst all this, individual Jamaicans interact with the dancehall industry and its culture to find their own paths of employment, social identity, and sexual mores. As Sounds of the Citizens illustrates, the world of entertainment in Jamaica is serious business and uniquely positioned as a powerful force within the community.
Sounds of the Citizens: Dancehall and Community in Jamaica
by Anne M. GalvinDancehall: it's simultaneously a source of raucous energy in the streets of Kingston, Jamaica; a way of life for a group of professional artists and music professionals; and a force of stability and tension within the community. Electronically influenced, relevant to urban Jamaicans, and highly danceable, dancehall music and culture forms a core of popular entertainment in the nation. As Anne Galvin reveals in Sounds of the Citizens, the rhythms of dancehall music reverberate in complicated ways throughout the lives of countless Jamaicans. Galvin highlights the unique alliance between the dancehall industry and community development efforts. As the central role of the state in supporting communities has diminished, the rise of private efforts such as dancehall becomes all the more crucial. The tension, however, between those involved in the industry and those within the neighborhoods is palpable and often dangerous. Amidst all this, individual Jamaicans interact with the dancehall industry and its culture to find their own paths of employment, social identity, and sexual mores. As Sounds of the Citizens illustrates, the world of entertainment in Jamaica is serious business and uniquely positioned as a powerful force within the community.
Sounds of the New Deal: The Federal Music Project in the West (Music in American Life)
by Peter Gough Peggy SeegerAt its peak the Federal Music Project (FMP) employed nearly 16,000 people who reached millions of Americans through performances, composing, teaching, and folksong collection and transcription. In Sounds of the New Deal, Peter Gough explores how the FMP's activities in the West shaped a new national appreciation for the diversity of American musical expression. From the onset, administrators and artists debated whether to represent highbrow, popular, or folk music in FMP activities. Though the administration privileged using "good" music to educate the public, in the West local preferences regularly trumped national priorities and allowed diverse vernacular musics to be heard. African American and Hispanic music found unprecedented popularity while the cultural mosaic illuminated by American folksong exemplified the spirit of the Popular Front movement. These new musical expressions combined the radical sensibilities of an invigorated Left with nationalistic impulses. At the same time, they blended traditional patriotic themes with an awareness of the country's varied ethnic musical heritage and vast--but endangered--store of grassroots music.
Sounds of the Pandemic: Accounts, Experiences, Perspectives in Times of COVID-19
by Maurizio Agamennone Daniele Palma Giulia SarnoSounds of the Pandemic offers one of the first critical analyses of the changes in sonic environments, artistic practice, and listening behaviour caused by the Coronavirus outbreak. This multifaceted collection provides a detailed picture of a wide array of phenomena related to sound and music, including soundscapes, music production, music performance, and mediatisation processes in the context of COVID-19. It represents a first step to understanding how the pandemic and its by-products affected sound domains in terms of experiences and practices, representations, collective imaginaries, and socio-political manipulations. This book is essential reading for students, researchers, and practitioners working in the realms of music production and performance, musicology and ethnomusicology, sound studies, and media and cultural studies.
Sounds of the South
by Daniel W. PattersonBeyond the familiar forms of Mississippi Delta Blues and mainstream country music, the vernacular music of the South also ranges from the ceremonial music of Native Americans, to "shout" singing in South Carolina sea islands, Cajun fiddling, and Mexican-American conjunto music. Sounds of the South assesses past efforts to document these richly varied musical forms and the challenges facing future work."Sounds of the South"--a 1989 conference that gathered record collectors, folklorists, musicians, record producers, librarians, archivists, and traditional music lovers--celebrated the official opening of the Southern Folklife Collection with the John Edwards Memorial Collection at the library of the University of North Carolina, Chapel Hill. Based on that conference, Sounds of the South includes Bill Malone's account of his own career as fan and scholar of country music, Paul Oliver on European blues scholarship, and Ray Funk on researching Black Gospel Quartets.The contributors look at a number of topics related to the role of the archivist/folklorist in recording and documenting the music of the South--evaluating past fieldwork and current needs in documentation, archival issues, prospects for the publication of recordings, and changes in music and technology. Written in an accessible style, this volume will be of interest to all those concerned with preserving the music of the American South.
Sounds of the Underground: A Cultural, Political and Aesthetic Mapping of Underground and Fringe Music
by Stephen GrahamIn Sounds of the Underground, Stephen Graham examines the largely unexplored terrain of underground music-exploratory forms of music-making, such as noise, free improvisation, and extreme metal, that exist outside or on the fringes of mainstream culture, generally independent from both the market and from traditional high-art institutions. Until now there has been little scholarly discussion of underground music and its cultural, political, and aesthetic importance. In addition to providing a much-needed historical outline of this diverse scene, Stephen Graham focuses on the digital age, showing the underground and its fringes as based largely in radical anti-capitalist politics and aesthetics, tied to the political contexts and structures of late-capitalism. Sounds of the Underground explores these various ideas of separation and capture through interviews and analysis, developing a critical account of both the music and its political and cultural economy. Book jacket.
Sounds, Societies, Significations
by Rima PovilionienėThis edited book covers many topics in musicological literature, gathering various approaches to music studies that encapsulate the vivid relation music has to society. It focusses on repertoires and geographical areas that have not previously been well frequented in musicology. As readers will see, music has many roles to play in society. Music can be a generator of social phenomena, or a result of them; it can enhance or activate social actions, or simply co-habit with them. Above all, music has a stable position within society, in that it actively participates in it. Music can either describe or prescribe social aspects; musicians may have a certain position/role in society (e. g. , the "popstar" as fashion leader, spokesman for political issues, etc. ). Depending on the type of society, music may have a certain "meaning" or "function" (music does not mean the same thing everywhere in the world). Lastly, music can define a society, and it is not uncommon for it to best define a particular historical moment. Case-studies in this work provide visibility for musical cultures that are rarely exposed in the dominant musicological discourse. Several contributions combine musicological analysis with "insider-musician" points of view. Some essays in the collection address the cultural clash between certain types of music/musicians and the respective institutional counterparts, while certain contributing authors draw on experimental research findings. Throughout this book we see how musics are socially significant, and - at the same time - that societies are musically significant too. Thus the book will appeal to musicologists, cultural scholars and semioticians, amongst others.
Soundscapes from the Americas: Ethnomusicological Essays on the Power, Poetics, and Ontology of Performance (SOAS Studies in Music)
by Donna A. BuchananDedicated to the late Gerard Béhague (1937-2005), whose pioneering work in Latin American music, popular culture, and performance studies contributed extensively to ethnomusicological discourse in the 1970s-1990s, this anthology offers comparative perspectives on the evolving legacy of performance ethnography in socio-musical analysis. President of the Society for Ethnomusicology from 1979-81, editor of its journal, Ethnomusicology, from 1974-78, and founder and editor of the trilingual Latin American Music Review from 1980 until his death, Béhague also established the ethnomusicology graduate program at the University of Texas at Austin in 1974, thereby influencing the training and thinking of dozens of the field’s practitioners. Among these are the volume’s eight authors, whose contributions reflect the heritage but also contemporary trajectories of Béhague’s scholarly concerns. Prefaced by an essay outlining key developments in the ethnography of performance paradigm, the volume’s seven case studies portray snapshots of musical life in representative communities of the Americas, including the southwestern and Pacific United States, Puerto Rico, Bolivia, Chile, Cuba, and Ecuador. Situated in milieus ranging from the indigenous festivals of the Andean highlands, to the competitive public gatherings of poet-singers in post-Pinochet Chile, to the Puerto Rican dance halls of the Hawaiian islands, these studies pose anthropological inquiries into the ontology of performance practice, the social power of poetic performativity, and the experience and embodiment of sound in place.
Soundscapes of Liberation: African American Music in Postwar France (Refiguring American Music)
by Celeste Day MooreIn Soundscapes of Liberation, Celeste Day Moore traces the popularization of African American music in postwar France, where it signaled new forms of power and protest. Moore surveys a wide range of musical genres, soundscapes, and media: the US military's wartime records and radio programs; the French record industry's catalogs of blues, jazz, and R&B recordings; the translations of jazz memoirs; a provincial choir specializing in spirituals; and US State Department-produced radio programs that broadcast jazz and gospel across the French empire. In each of these contexts, individual intermediaries such as educators, producers, writers, and radio deejays imbued African American music with new meaning, value, and political power. Their work resonated among diverse Francophone audiences and transformed the lives and labor of many African American musicians, who found financial and personal success as well as discrimination in France. By showing how the popularity of African American music was intertwined with contemporary structures of racism and imperialism, Moore demonstrates this music's centrality to postwar France and the convergence of decolonization, the expanding globalized economy, the Cold War, and worldwide liberation movements.
Soundscapes of Uyghur Islam (Framing the Global)
by Rachel HarrisChina's Xinjiang Uyghur Autonomous Region is experiencing a crisis of securitization and mass incarceration. In Soundscapes of Uyghur Islam, author Rachel Harris examines the religious practice of a group of Uyghur women in a small village now engulfed in this chaos. Despite their remote location, these village women are mobile and connected, and their religious soundscapes flow out across transnational networks. Harris explores the spiritual and political geographies they inhabit, moving outward from the village to trace connections with Mecca, Istanbul, Bishkek, and Beijing. Sound, embodiment, and territoriality illuminate both the patterns of religious change among Uyghurs and the policies of cultural erasure used by the Chinese state to reassert its control over the land the Uyghurs occupy. By drawing on contemporary approaches to the circulation of popular music, Harris considers how various forms of Islam that arrive via travel and the Internet come into dialogue with local embodied practices. Synthesized together, these practices create new forms that facilitate powerful, affective experiences of faith.
Soundscapes of Wellbeing in Popular Music (Geographies of Health Series)
by Robin Kearns Gavin J. Andrews Paul KingsburyUnearthing the messy and sprawling interrelationships of place, wellbeing, and popular music, this book explores musical soundscapes of health, ranging from activism to international charity, to therapeutic treatments and how wellbeing is sought and attained in contexts of music. Drawing on critical social theories of the production, circulation, and consumption of popular music, the book gathers together diverse insights from geographers and musicologists. Popular music has become increasingly embedded in complex and often contradictory discourses of wellbeing. For instance, some new genres and sub-cultures of popular music are associated with violence, drug-use, and the angst of living, yet simultaneously define the hopes and dreams of millions of young people. At a service level, popular music is increasingly used as a therapeutic modality in holistic medicine, as well as in conventional health care and public health practice. The genre of popular music, then, is fundamental to human wellbeing as an active and central part of people’s emotional lives. By conceptually and empirically foregrounding place, this book demonstrates how - music whether from particular places, about particular places, or played in particular places ” is a crucial component of health and wellbeing.
Soundscapes: Exploring Music in a Changing World
by Kay Kaufman ShelemayMusic doesn’t stop at the border, and neither should your textbook. This text gives students a global sense of music and its significance across cultures by introducing them to a diverse repertoire and developing listening skills applicable to all music. An accessible three-part model for listening―sound, setting, and significance―facilitates comparisons of various musical styles and meanings, and with Total Access, Soundscapes provides the digital resources students need to discover new music in a digitally connected world.
Soundtrack Available: Essays on Film and Popular Music
by Arthur Knight Pamela Robertson WojcikFrom the silent era to the present day, popular music has been a key component of the film experience. Yet there has been little serious writing on film soundtracks that feature popular music. Soundtrack Available fills this gap, as its contributors provide detailed analyses of individual films as well as historical overviews of genres, styles of music, and approaches to film scoring. With a cross-cultural emphasis, the contributors focus on movies that use popular songs from a variety of genres, including country, bubble-gum pop, disco, classical, jazz, swing, French cabaret, and showtunes. The films discussed range from silents to musicals, from dramatic and avant-garde films to documentaries in India, France, England, Australia, and the United States. The essays examine both "nondiegetic" music in film--the score playing outside the story space, unheard by the characters, but no less a part of the scene from the perspective of the audience--and "diegetic" music--music incorporated into the shared reality of the story and the audience. They include analyses of music written and performed for films, as well as the now common practice of scoring a film with pre-existing songs. By exploring in detail how musical patterns and structures relate to filmic patterns of narration, character, editing, framing, and mise-en-scene, this volume demonstrates that pop music is a crucial element in the film experience. It also analyzes the life of the soundtrack apart from the film, tracing how popular music circulates and acquires new meanings when it becomes an official soundtrack. Contributors. Rick Altman, Priscilla Barlow, Barbara Ching, Kelley Conway, Corey Creekmur, Krin Gabbard, Jonathan Gill, Andrew Killick, Arthur Knight, Adam Knee, Jill Leeper, Neepa Majumdar, Allison McCracken, Murray Pomerance, Paul Ramaeker, Jeff Smith, Pamela Robertson Wojcik, Nabeel Zuberi
Soundtrack of Silence: Love, Loss, and a Playlist for Life
by Matt HayAn inspiring memoir of a young man who discovered he was going completely deaf just at the moment he’d fallen in love for the first time.As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast.A personal soundtrack was Hay’s determined compensation for his condition. As a typical Midwestern kid growing up in the 1980s whose life events were pegged to pop music, Hay planned to commit his favorite songs to memory. He prepared a mental playlist of the bands he loved and created a way to tap into his most resonant memories. And the track he needed to cement most clearly? The one he and his new girlfriend, Nora—the love of his life—listened to in the car on their first date.Made vivid with references to instantly recognizable songs—from the Eagles to Elton John, Bob Marley to Bing Crosby, U2 to Peter Frampton—Soundtrack of Silence asks readers to run the soundtrack of their own lives through their minds. It’s an involving memoir of loss and disability, and, ultimately, a both unique and universal love story.