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The acclaimed book on macular degeneration--now completely revised and updated with cutting edge research and the latest developments in the field.More than fifteen million Americans have age-related macular degeneration (AMD), and the disease will strike 200,000 more people this year. It is the most prevalent cause of vision loss in the western world. Dr. Lylas Mogk, the founding director of the Visual Rehabilitation and Research Center of the Henry Ford Health System, has a unique professional and personal understanding of AMD. A doctor and loving daughter of a parent with this frightening though manageable condition, Mogk here explains exactly what it is and how to limit its effect on your life. Reassuring and comprehensive--complete with illuminating first person stories of people with AMD--Macular Degeneration will help you or someone you love with information on* Reducing your risk factors* Revolutionary new technology, including laser surgery and alternative treatments* New research discoveries in nutrition--and eye-healthy recipes* The latest low-vision computer software programs* Coping with depression and frustration* Active online communities of people with macular degeneration Plus a Low Vision Living Rehab program to help you read better, see better, and live independently!From the Trade Paperback edition.
Dr. Lylas Mogk has a unique personal and professional understanding of AMD. This book explains how to successfully manage and limit its effect on a person's life.
This invaluable guide to living well with vision loss is the perfect blend of abundant factual material and real-life experience. The book's positive, take-charge approach offers reassurance, hope, and hundreds of proven techniques, strategies, and tips for both the newly diagnosed and those at later stages of their disease. "My Story" vignettes in each chapter describe the author's fears, foibles, and triumphs in challenging situations. Readers will identify with the author's experiences and be encouraged by knowing she successfully traveled the same path.
Mad at School explores the contested boundaries between disability, illness, and mental illness in the setting of U.S. higher education. Much of the research and teaching within disability studies assumes a disabled body but a rational and energetic (an 'agile') mind. In Mad at School, scholar and disabilities activist Margaret Price asks: How might our education practices change if we understood disability to incorporate the disabled mind?
This fascinating history of mind doctors and their patients probes the ways in which madness, badness, and sadness have been understood over the last two centuries. Lisa Appignanesi charts a story from the days when the mad were considered possessed to our own century when the official psychiatric manual lists some 350 mental disorders. Women play a key role here, both as patients "among them Virginia Woolf, Sylvia Plath, and Marilyn Monroe" and as therapists. Controversially, Appignanesi argues that women have significantly changed the nature of mind-doctoring, but in the process they have also inadvertently highlighted new patterns of illness.
A mother whose child has had a cochlear implant tells Laura Mauldin why enrollment in the sign language program at her daughter's school is plummeting: "The majority of parents want their kids to talk." Some parents, however, feel very differently, because "curing" deafness with cochlear implants is uncertain, difficult, and freighted with judgment about what is normal, acceptable, and right. Made to Hear sensitively and thoroughly considers the structure and culture of the systems we have built to make deaf children hear.Based on accounts of and interviews with families who adopt the cochlear implant for their deaf children, this book describes the experiences of mothers as they navigate the health care system, their interactions with the professionals who work with them, and the influence of neuroscience on the process. Though Mauldin explains the politics surrounding the issue, her focus is not on the controversy of whether to have a cochlear implant but on the long-term, multiyear undertaking of implantation. Her study provides a nuanced view of a social context in which science, technology, and medicine are trusted to vanquish disability--and in which mothers are expected to use these tools. Made to Hear reveals that implantation has the central goal of controlling the development of the deaf child's brain by boosting synapses for spoken language and inhibiting those for sign language, placing the politics of neuroscience front and center.Examining the consequences of cochlear implant technology for professionals and parents of deaf children, Made to Hear shows how certain neuroscientific claims about neuroplasticity, deafness, and language are deployed to encourage compliance with medical technology.
When Marya Hornbacher published her first book, Wasted: A Memoir of Anorexia and Bulimia, she did not yet know the reason for her all-but-shattered young life. At age twenty-four, Hornbacher was diagnosed with Type 1 rapid-cycle bipolar, the most severe form of bipolar disease there is. In Madness, in her trademark wry and utterly self-revealing voice, Hornbacher tells her new story. Through scenes of astonishing visceral and emotional power, she takes us inside her own desperate attempts to control violently careening mood swings by self-starvation, substance abuse, numbing sex, and self-mutilation. How Hornbacher fights her way up from a madness that all but destroys her, and what it is like to live in a difficult and sometimes beautiful life and marriage-where bipolar always beckons-is at the heart of this brave and heart-stopping memoir.
A unique work that brings together a broad range of specialist disciplines to create a new perspective on social and physical exclusion from society. Brings a much needed comparative approach to the subject of disability. Confinement, hermaphrodites, killing of disabled children, leprosy, deafness, and funerary rituals are explored.
The author allows the reader to enter her personal "twilight zone," an inconsistent world of grayness brought on by the dual disability of hearing and sight loss. She uses specific events in her life to show the reader with these disabilities that they are not alone in fighting despair and confusion. Statements from others who have faced Usher syndrome and retinitis pigmentosa lend credence to the author's message: "giving up is not an answer." Recommended reading for family members and friends, professionals in the field, and persons with retinitis pigmentosa and Usher syndrome. -Linda Lindell, Information and Referral Coordinator Texas State Library Program for the Blind and Physically Handicapped
When cancer unexpectedly struck down Beverly Butler's guide dog, Una, it hurt to imagine another dog taking her place. Yet it was because of what Una and three other dedicated dogs before her had given her in terms of independence and dignity that made getting a new dog as certain as sunrise. In Maggie By My Side, she tells of the challenges, hazards, and joys of training with Maggie, her fifth guide dog since losing her sight at fourteen. It is also an account of the foibles, quirks, and devotion of the guide dogs who preceded Maggie. Part of the story is poignant--the anguish of Una's death--and part is hilarious--Maggie's introduction to the family cats. In this lively narrative we learn the history of guide dogs, what it takes to become a trainer, how new guide dogs come to be, and share in the vivid firsthand experiences that bring it all to life. This is a Junior Literary Guild selection, chosen as an outstanding book for boys and girls (A Group). Pictures are described.
The Magic Castle: A Mother's Harrowing True Story of Her Adoptive Son's Multiple Personalities and the Triumph of Healingby Carole Smith
"This is a true account of my experiences in successfully raising a child who suffered from multiple personality disorder. In writing the book, I have made extensive use of notes I took during therapy sessions and directly after encounters with alters, mental health personnel, a child placement organization, and the office of the district attorney. Occasionally, I have combined several similar events to avoid repetition. I was not present at the original incidents but I did observe many revivifications of the actual events. My belief in the truth of the personalities' revelations is based upon physical and circumstantial evidence and also occasional verification from witnesses. All of my encounters with the alters, including revivifications, have been accurately depicted and have not been exaggerated in any way. Many names, locations, and identifying details, including those of my family, have been changed or modified. The only names used in this book that have not been altered are those of Bill Conti, Dr. Steven J. Kingsbury, Dr. Nina Fish-Murray, Marie Párente, and Dr. Van der Kolk. The names of places and institutions that have not been changed are Boston Children's Hospital; Camp Wedicko; County District Attorneys Office; Massachusetts Department of Social Services; Massachusetts Mental Health Center; Mount Auburn Hospital; Northboro, Massachusetts; Robert F. Kennedy Residential School; and University of Massachusetts Acute Adolescent Psychiatric Unit at Westboro. As a final note, when he was thirteen years old, my son wanted to sever all connections to the perpetrators and asked to have his first, middle, and last names changed. I gave him an old family name of mine, my husband's middle name, and, of course, our last name. It is important that the reader know of these changes. However, throughout this book I have simply called him Alex."
Eight vulnerable girls and their helpless teachers are forced off a school bus and held hostage. The madman who has them at gunpoint has a simple plan: one hostage an hour will die unless the demands are met. <P><P>Called to the scene is Arthur Potter, the FBI's best hostage negotiator. He has a plan. But so does one of the hostages-a beautiful teacher who's willing to do anything to save the lives of her students. Now, the clock is ticking as a chilling game of cat and mouse begins.
Mainstreaming and the American Dream: Sociological Perspectives on Parental Coping with Blind and Visually Impaired Childrenby Howard Nixon II
Based on in-depth interviews with parents and professionals, this research monograph presents a sociological framework for looking at the needs and aspirations of parents of blind and visually impaired children.
What do a dog whistle that doesn't sound, a knife wielding killer at the opera and a poisoner and gun-attacking murder have in common? Captain Duncan Maclain, the blind detective must get to the bottom of these three exciting mysteries. In the Silent Whistle, he must discover who killed the young movie manager and where the money has gone. In the Melody in Death, who is killing with a knife the people at the Opera, and in the Murderer Who Wanted More, who is killing off people in the family and why is Bonnie the next target?
How the anti-ADA forces prevailed
This little handbook created by Guide Dog Users Inc. offers information, considerations and suggestions on what you should do when considering partnering with a guide dog. This book gives advice on what considerations you should take into account when choosing a guide dog school, questions and considerations you should ask yourself while in training. The book also gives an outline of what training is like, and things you should bring, as well, as things to help you as a new team after graduation. Advocacy is discussed as well as due process for those situations that can not be resolved. Excellent resource for anyone who is considering taking the plunge and working with a guide dog. And it is also good for those who arleady have a guide dog.
From the book: The newly revised and updated Making Life More Livable is the essential guide for adults experiencing vision loss and is an invaluable resource for their family and friends. Full of practical tips and illustrated by numerous photographs, this easy-to- use resource shows how people who are visually impaired can continue living independent, productive lives at home on their own. Useful general guidelines and room-by-room specifics provide simple and effective solutions for making homes accessible and everyday activities for individuals with visual impairments.
Norman Cantor analyzes the legal and moral status of people with profound mental disabilities -- those with extreme cognitive impairments that prevent their exercise of medical self-determination. He proposes a legal and moral framework for surrogate medical decision making on their behalf. The issues Cantor explores will be of interest to professionals in law, medicine, psychology, philosophy, and ethics, as well as to parents, guardians, and health care providers who face perplexing issues in the context of surrogate medical decision making. The profoundly mentally disabled are thought by some moral philosophers to lack the minimum cognitive ability for personhood. Countering this position, Cantor advances both theoretical and practical arguments for according them full legal and moral status. He also argues that the concept of intrinsic human dignity should have an integral role in shaping the bounds of surrogate decision making. Thus, he claims, while profoundly mentally disabled persons are not entitled to make their own medical decisions, respect for intrinsic human dignity dictates their right to have a conscientious surrogate make medical decisions on their behalf. Cantor discusses the criteria that bind such surrogates. He asserts, contrary to popular wisdom, that the best interests of the disabled person are not always the determinative standard: the interests of family or others can sometimes be considered. Surrogates may even, consistent with the intrinsic human dignity standard, sometimes authorize tissue donation or participation in non-therapeutic medical research by profoundly disabled persons. Intrinsic human dignity limits the occasions for such decisions and dictates close attention to the preferences and feelings of the profoundly disabled persons themselves. Cantor also analyzes the underlying philosophical rationale that makes these decision-making criteria consistent with law and morals.
The disability of blindness is a learned social role. The various attitudes and patterns of behavior that characterize people who are blind are not inherent in their condition but, rather, are acquired through ordinary processes of social learning. The Making of Blind Men is intended as a systematic and integrated overview of the blindness problem in America. Dr. Scott chronicles which aspects of this problem are being dealt with by organizations for the blind and the effectiveness of this intervention system. He details the potential consequences of blind people becoming clients of blindness agencies by pointing out that many of the attitudes, behavior patterns, and qualities of character that have been assumed to be given to blind people by their condition are, in fact, products of socialization. As the self-concepts of blind men are generated by the same processes of socialization that shape us all, Dr. Scott puts forth the challenge of reforming the organized intervention system by critically evaluating the validity of blindness workers' assumptions about blindness and the blind. It is felt that an enlightened work force can then render the socialization process of the blind into a rational and deliberate force for positive change.
Making Online Teaching Accessible offers online teachers, instructional designers, and content developers a comprehensive resource for designing online courses and delivering course content that is accessible for all students including those with visual and audio disabilities. Grounded in the theories of learner-centered teaching and successful course design, Making Online Teaching Accessible outlines the key legislation, decisions, and guidelines that govern online learning. The book also demystifies assistive technologies and includes step-by-step guidance for creating accessible online content using popular programs like Microsoft Office and Adobe Acrobat, as well as multimedia tools. Including a wealth of helpful tips and suggestions for effectively communicating with disabled students, the book contains practical advice on purchasing accessible course management systems, developing solutions for inaccessibility issues, and creating training materials for faculty and staff to make online learning truly accessible.
Making Rights a Reality? explores the way in which disability activists in the United Kingdom and Canada have transformed their aspirations into legal claims in their quest for equality. It unpacks shifting conceptualizations of the political identity of disability and the role of a rights discourse in these dynamics. In doing so, it delves into the diffusion of disability rights among grassroots organizations and the traditional disability charities. The book draws on a wealth of primary sources including court records and campaign documents and encompassing interviews with more than sixty activists and legal experts. While showing that the disability rights movement has had a significant impact on equality jurisprudence in two countries, the book also demonstrates that the act of mobilizing rights can have consequences, both intended and unintended, for social movements themselves.
An otherwise ordinary cat, Oscar has the uncanny ability to predict when people in the Steere House nursing home are about to die. Dr. Dosa tells the stories of several patients and examines end-of-life care as it exists today. From text: Though my interviews with decedents' families were meant to provide me with more insight into what Oscar does, I found myself learning a great deal more about the diseases that had destroyed my patients' lives than I did about the cat. For all the mystery surrounding Oscar, there was little mystery about the devastating consequences of dementia.
Making Sense of Autistic Spectrum Disorders: Create the Brightest Future for Your Child with the Best Treatment Optionsby James Coplan
In this authoritative and empowering book, one of the world's leading experts on early child development gives caregivers of children on the autistic spectrum the knowledge they need to navigate the complex maze of symptoms, diagnoses, tests, and treatment options that await them. For more than thirty years, James Coplan, M.D., has been helping families cope with the challenges posed by autistic spectrum disorders (ASD). Each family that walks into his office, he knows, is about to begin a journey. With this book, he lays out the steps of that journey. Dr. Coplan brings you into the treatment rooms and along for the tests and evaluations, and provides the kind of practical hands-on guidance that will help you help your child with ASD through every phase of life. At a time when ASD has become the subject of wild theories and uninformed speculation, Dr. Coplan grounds his recommendations in reality. He helps you understand for yourself where your child may be on the spectrum that includes autism, Asperger Syndrome, and Pervasive Developmental Disorder-Not Otherwise Specified. His clear, comprehensive, and compassionate advice prepares you to make informed medical decisions, evaluate the various educational and therapeutic alternatives, and find answers to such fundamental questions as "How do I optimize my child's long-term potential?"; Which interventions will best serve my child?"; How do the various therapies work, and what is the evidence to support them?"; What is the best way to teach my child?" This book empowers you to be an expert advocate for your child, so that you'll know when to say no to an ill-advised therapy or medication and can make with confidence the hundreds of important decisions you will face in the years ahead. For every parent who has made the painful transition from "Why did this happen?" to "What can we do to help our child?," here is the indispensable guidebook you've been waiting for.
Making the Transition from High School to College for Students with Disabilities
The authors map the complex, quirky history of the DSM, often called the "psychiatric Bible" from its inception in the early 1950s to the present. They show that the DSM has been used and misused to shape social policy toward people with mental illnesses. The DSM has also been highly subject to political currents. Specific "diagnoses" such as homosexuality, borderline personality, and post-traumatic stress disorder are discussed in depth as illustrations.
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